Kelsey is amazing. Her ability to learn and adapt is amazing. I am a little biased.
Kelsey has known her “left” from her “right” for quite awhile now. This probably has resulted from the weekly therapy she receives and the verbal movement cues we give her. This past fall, she developed enough motor control to make choice selections based on telling her where each toy was located. (We would present both toys in her strongest visual field and then verbally tell her “ball on left, beads on right.” She would then choose which toy to play with.) Her early intervention SLP brought “yes” and “no” cards out and she began answering questions with those.
She has progressed from a borrowed three button device which we programmed to say "yes" and "no" and she accurately answered all kinds of age appropriate knowledge questions --even things I didn't teach her on purpose. She also gets a "kick" out of having a voice. (She also thinks it's funny to say "no" 99% of the time when asked if Mama is a good girl.)
I then sought out a borrowed "Go Talk 4" with 4 choices on each of five levels. She has mastered use of this device and quickly picks up new visual icons and remembers their associated meaning from session to session. We have now sent this back to the agency we borrowed it from.
We received in return a "Go Talk 20" this week to borrow for awhile. (They did not have the "Go Talk 9" available) The "9" would have been more appropriate for Kelsey's motor skills because the squares of the "20" are smaller than her fisted hand. She is not always able to activate the voice output of the "20" because of this, but gets her hand to the desired button and leaves it there so her intent is clear.
She is able to handle visually all 20 icons filled out which is amazing considering her visual impairment. She quickly learned all the new choices we added with the "20" and has remembered them ever since without me going back over them at all.
She also learned to do sentences. (with the "4" we had programmed in one word phrases like "ball", "eat", "play") With the "20" there is enough room that we did "I feel", "I want", "I need" and then various choices for those items.
We believe Kelsey is ready to move on to a more complex device which will allow her to have more self directed conversations. We are planning to get the Ipad with the Proloquo2go software and accessories.
We were excited to trial an Ipad at the Apple store using some free downloadable children’s games. We were amazed at what she was able to do with the device and the size of the icons she was able to access. Because the Ipad is essentially a computer screen, it acts like a dynamic “light box” like she uses in vision therapy. Kelsey was very motivated and seemed to be seeing better than I had even hoped she would be able to.
For now the GoTalk 20 gives her alot more choices.
The girl's name Kelsey \k(e)-lsey, kel-sey\, also used as boy's name Kelsey, is pronounced KEL-see. It is of Old English origin, and its meaning is "victorious ship".
We chose this name because we believed she was sailing through life's challenges (losing her identical twin sister).
We have since truly learned that this little girl fits her name.
"You have to put in many, many, many tiny efforts that nobody sees or appreciates before you achieve anything worthwhile."- Brian Tracy
"Accept the gift as if it were one you had chosen." -Jane Hirshfield
“The only limit to our realization of tomorrow will be our doubts of today. Let us move forward with strong and active faith.”-- Franklin D. Roosevelt
WHAT YOU SHOULD KNOW ABOUT MY CHILD
Remember that he is, first of all, my child.
Let me see him smiling in his sleep and let me think about how handsome he is and not about how delayed that smile was in coming.
Help me not lose sight of my son in the shadow of his limitations I know that you care for my child and that you work hard with him.
I need your expertise to help him become all that he is capable of being.
You need my help in understanding who he really is and in following through at home with things that are important.
Remember, though, that you send him home at night and have weekends off and paid vacations.
Let me have the luxury of having a vacation, sometimes physically, sometimes just emotionally, for a day, a week, a month, without your judging me.
I will be there for him when you are long gone.
I love my child with an intensity that you can only imagine.
If on a given day I am tired or cross with him, listen to me, lighten my burden, but do not judge me.
Celebrate with me, rejoice in who he is and who he will become but forgive me if from time to time I shed a tear for who he might have been.
- Author Unknown
Followers
Kelsey at 10 months
Innocent Eyes--Our Real Life Doll
The Mountain Author: Jim Stovall From: You Don't Have to Be Blind to See Publisher: Thomas Nelson Publishers
There were two warring tribes in the Andes, one that lived in the lowlands and the other high in the mountains. The mountain people invaded the lowlanders one day, and as part of their plundering of the people, they kidnapped a baby of one of the lowlander families and took the infant with them back up into the mountains.
The lowlanders didn't know how to climb the mountain. They didn't know any of the trails that the mountain people used, and they didn't know where to find the mountain people or how to track them in the steep terrain.
Even so, they sent out their best party of fighting men to climb the mountain and bring the baby home.
The men tried first one method of climbing and then another. They tried one trail and then another. After several days of effort, however, they had climbed only several hundred feet.
Feeling hopeless and helpless, the lowlander men decided that the cause was lost, and they prepared to return to their village below.
As they were packing their gear for the descent, they saw the baby's mother walking toward them. They realized that she was coming down the mountain that they hadn't figured out how to climb.
And then they saw that she had the baby strapped to her back. How could that be?
One man greeted her and said, "We couldn't climb this mountain. How did you do this when we, the strongest and most able men in the village, couldn't do it?"
She shrugged her shoulders and said, "It wasn't your baby."
Kaitlyn and Kelsey
9 weeks, 5 days in utero
Psalm 139 (New International Version)
1 O LORD, you have searched me and you know me.
2 You know when I sit and when I rise; you perceive my thoughts from afar.
3 You discern my going out and my lying down; you are familiar with all my ways.
4 Before a word is on my tongue you know it completely, O LORD.
5 You hem me in—behind and before; you have laid your hand upon me.
6 Such knowledge is too wonderful for me, too lofty for me to attain.
7 Where can I go from your Spirit? Where can I flee from your presence?
8 If I go up to the heavens, you are there; if I make my bed in the depths, you are there.
9 If I rise on the wings of the dawn, if I settle on the far side of the sea,
10 even there your hand will guide me, your right hand will hold me fast.
11 If I say, "Surely the darkness will hide me and the light become night around me,"
12 even the darkness will not be dark to you; the night will shine like the day, for darkness is as light to you.
13 For you created my inmost being; you knit me together in my mother's womb.
14 I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.
15 My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth,
16 your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be.
17 How precious to me are your thoughts, O God! How vast is the sum of them!
18 Were I to count them, they would outnumber the grains of sand. When I awake, I am still with you.
19 If only you would slay the wicked, O God! Away from me, you bloodthirsty men!
20 They speak of you with evil intent; your adversaries misuse your name.
21 Do I not hate those who hate you, O LORD, and abhor those who rise up against you?
22 I have nothing but hatred for them; I count them my enemies.
23 Search me, O God, and know my heart; test me and know my anxious thoughts.
24 See if there is any offensive way in me, and lead me in the way everlasting.
2 comments:
Awesome, that is fantastic Kelsey. Can't wait to see how you wow us with your Ipad!
Sweet, sweet girl...great job!!
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